Seeing through their eyes: lived experiences of people with retinitis pigmentosa
نویسندگان
چکیده
منابع مشابه
Mental health of people with retinitis pigmentosa.
PURPOSE The purpose of this study was to evaluate and compare the mental health of patients with retinitis pigmentosa (RP) with that of the general population of Korea. METHODS Online surveys were completed by patients registered with the KRPS (Korean Retinitis Pigmentosa Society), an online organization that promotes research on RP and provides advocacy and online and offline support and inf...
متن کاملOpsin phosphorylation in retinas from autopsy eyes with retinitis pigmentosa.
Opsin phosphorylation in light was detected in three retinas from autopsy eyes with retinitis pigmentosa (RP) including one with sex-linked RP and two with autosomal recessive RP, that were studied at postmortem intervals of 1-4 hr. In these retinas from RP eyes, opsin phosphorylation in light was reduced compared with that in normal human retinas, a finding that is compatible with reduced amou...
متن کاملVisual training and emotional state of people with retinitis pigmentosa.
The purpose of the study was to improve the visual functioning of people with restriction in contrast sensitivity (CS), such as retinitis pigmentosa (RP), by means of a visual training program. Twenty-six volunteers with RP participated, distributed in two groups: 15 who made up the experimental group (who received the training program) and 11 who participated as a control group (without traini...
متن کاملFrequency Domain Electroretinography in Retinitis Pigmentosa versus Normal Eyes
PURPOSE To compare electroretinogram (ERG) characteristics in patients with retinitis pigmentosa (RP) and normal subjects using frequency domain analysis. METHODS Five basic ERG recordings were performed in normal subjects and patients with a clinical diagnosis of RP according to the ISCEV (International Society of Clinical Electrophysiology of Vision) protocol. Frequency domain analysis was ...
متن کاملIncreased aqueous flare is associated with thickening of inner retinal layers in eyes with retinitis pigmentosa
Retinitis pigmentosa(RP) is a hereditary retinal disease that causes photoreceptor, outer retinal, degeneration. Although the pathogenesis is still unclear, there have been numerous reports regarding inner retinal changes in RP eyes. The aim of this study is to retrospectively evaluate the changes in the thicknesses of different retinal layers of RP eyes, and its association with aqueous flare,...
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ژورنال
عنوان ژورنال: Eye
سال: 2017
ISSN: 0950-222X,1476-5454
DOI: 10.1038/eye.2016.315